Access to Medical Nutrition is essential for all people living with PKU. With the ongoing advocacy by the MDDA, we are fortunate for the ongoing support provided by the Australian Government & PBAC to support our rare families with access to special medical foods & formulas. We stand in support of our friends in America to have their voices heard as they seek unified support for these same essentials. #MNEAMonday#medicalnutrition
We are proud to share the latest episode of the Dr Golly Podcast, featuring our very own member, Yolanda! In this heartfelt and inspiring conversation, Yolanda opens up about her journey with her son, Hudson, diagnosed with PKU. Listening to Yolanda's story is incredibly empowering, she shares invaluable insights into navigating the complexities of a PKU diagnosis, while raising important awareness and offering hope and strength to others facing similar situations.
Tune in to the podcast and share the episode with your friends and family.
🔊🎙Listen now on Dr Golly & The Experts wherever you enjoy your podcasts!
We are thrilled to present South Australia's very own Rosanna Mangiarelli as the MC for Adelaide’s upcoming Black-Tie Gala Ball! Get ready for an unforgettable evening with captivating performances by Claudia Migliacco, Escola De Samba Adelaide and electrifying beats from DJ Valandi that will keep you on your feet all night long! 🎶🕺
Spread the word and invite your friends and family as we come together to support families in Australia affected by Phenylketonuria (PKU) and other rare Inborn Errors of Metabolism (IEMs).
Limited tickets available! mdda.org.au/mdda-black-tie-gala/
We are absolutely thrilled to read of Harry's remarkable progress, and we want to extend our heartfelt best wishes to the family. MDDA are dedicated to supporting and raising awareness for inherited rare metabolic disorders, including PA and other rare IEMs.