Media
📣 Thank You to the RCH Metabolic Team! 🌟
We want to extend our gratitude to the RCH Metabolic team for participating in the Great Protein Challenge and taking on the challenge of limiting their protein intake to 10g for a day.
“We had several other teams in our office area who were very interested and tried some of our home-cooked low-protein foods, including pancakes, patties, bread, and pasta with tomato sauce. Not to forget the formula!”
Thank you, RCH for your support to the IEM community. 💚
We want to extend our gratitude to the RCH Metabolic team for participating in the Great Protein Challenge and taking on the challenge of limiting their protein intake to 10g for a day.
“We had several other teams in our office area who were very interested and tried some of our home-cooked low-protein foods, including pancakes, patties, bread, and pasta with tomato sauce. Not to forget the formula!”
Thank you, RCH for your support to the IEM community. 💚
Are you up for the Challenge in 2024? SIGN up now https://thegreatproteinchallenge.com.au
🌟 Message from MDDA 🌟
Dear Members and Community,
We were deeply saddened to hear of the dissolution of the PKU Association of NSW Inc. To all PKUNSW members, families, and friends, we want you to know that you are welcome with open arms at MDDA. Our doors are always open to provide assistance, guidance, and support throughout our shared PKU/IEM journey.
To every member of the PKUNSW committees, past and present, we extend our deepest appreciation for your collaboration and support over the years. Your commitment to serving the PKU community with compassion and dedication is truly admirable.
Dear Members and Community,
We were deeply saddened to hear of the dissolution of the PKU Association of NSW Inc. To all PKUNSW members, families, and friends, we want you to know that you are welcome with open arms at MDDA. Our doors are always open to provide assistance, guidance, and support throughout our shared PKU/IEM journey.
To every member of the PKUNSW committees, past and present, we extend our deepest appreciation for your collaboration and support over the years. Your commitment to serving the PKU community with compassion and dedication is truly admirable.
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🌍 Celebrating Rare Disease Day 🌍
Rare Disease Day happens every year on February 28 (or 29 in leap years)—the rarest day of all. For MDDA and the IEM community, Rare Disease Day is a chance to share our experiences, teach others about living with a rare disease, and talk to policy makers. It creates a feeling of togetherness and common goals as we go through life in the IEM community. Let's stand together on Rare Disease Day, raising awareness, pushing for change, and supporting each other on our special journey. This day reminds us that even though globally each rare disease affects only a small number of people, together they impact over 300 million individuals worldwide. Rare Disease Day brings hope and strength to many of us. It shows that our challenges are recognised, and our efforts to speak up can make a real difference. This day sheds light on the unique obstacles we face, from limited treatment choices to the complexities of managing our health. By spreading awareness, Rare Disease Day helps us get more funding for research, find new solutions, and improve access to the right healthcare. What is Rare Disease Day? www.rarediseaseday.org/
Rare Disease Day 2024 🤝 🌐💚 Share your story, spread the word. Let's make Rare Disease Day a day that transforms lives! 🚀 #RareDiseaseDay #UnityInRare #MDDA
Rare Disease Day happens every year on February 28 (or 29 in leap years)—the rarest day of all. For MDDA and the IEM community, Rare Disease Day is a chance to share our experiences, teach others about living with a rare disease, and talk to policy makers. It creates a feeling of togetherness and common goals as we go through life in the IEM community. Let's stand together on Rare Disease Day, raising awareness, pushing for change, and supporting each other on our special journey. This day reminds us that even though globally each rare disease affects only a small number of people, together they impact over 300 million individuals worldwide. Rare Disease Day brings hope and strength to many of us. It shows that our challenges are recognised, and our efforts to speak up can make a real difference. This day sheds light on the unique obstacles we face, from limited treatment choices to the complexities of managing our health. By spreading awareness, Rare Disease Day helps us get more funding for research, find new solutions, and improve access to the right healthcare. What is Rare Disease Day? www.rarediseaseday.org/
Rare Disease Day 2024 🤝 🌐💚 Share your story, spread the word. Let's make Rare Disease Day a day that transforms lives! 🚀 #RareDiseaseDay #UnityInRare #MDDA
