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Metabolic Dietary Disorders Association
Metabolic Dietary Disorders Association1 month ago
When this happens, it's usually because the owner only shared it with a small group of people, changed who can see it or it's been deleted.
Metabolic Dietary Disorders Association
Metabolic Dietary Disorders Association1 month ago
🌍 Celebrating Rare Disease Day 🌍
Rare Disease Day happens every year on February 28 (or 29 in leap years)—the rarest day of all. For MDDA and the IEM community, Rare Disease Day is a chance to share our experiences, teach others about living with a rare disease, and talk to policy makers. It creates a feeling of togetherness and common goals as we go through life in the IEM community. Let's stand together on Rare Disease Day, raising awareness, pushing for change, and supporting each other on our special journey. This day reminds us that even though globally each rare disease affects only a small number of people, together they impact over 300 million individuals worldwide. Rare Disease Day brings hope and strength to many of us. It shows that our challenges are recognised, and our efforts to speak up can make a real difference. This day sheds light on the unique obstacles we face, from limited treatment choices to the complexities of managing our health. By spreading awareness, Rare Disease Day helps us get more funding for research, find new solutions, and improve access to the right healthcare. What is Rare Disease Day? www.rarediseaseday.org/
Rare Disease Day 2024 🤝 🌐💚 Share your story, spread the word. Let's make Rare Disease Day a day that transforms lives! 🚀 #RareDiseaseDay #UnityInRare #MDDA
Metabolic Dietary Disorders Association
Metabolic Dietary Disorders Association4 months ago
When this happens, it's usually because the owner only shared it with a small group of people, changed who can see it or it's been deleted.
Metabolic Dietary Disorders Association
Metabolic Dietary Disorders Association4 months ago
When this happens, it's usually because the owner only shared it with a small group of people, changed who can see it or it's been deleted.
Metabolic Dietary Disorders Association
Metabolic Dietary Disorders Association4 months ago
Access to Medical Nutrition is essential for all people living with PKU. With the ongoing advocacy by the MDDA, we are fortunate for the ongoing support provided by the Australian Government & PBAC to support our rare families with access to special medical foods & formulas. We stand in support of our friends in America to have their voices heard as they seek unified support for these same essentials. #MNEAMonday #medicalnutrition